Challenge yourself to move 10,000 steps a day this September to support people with vanishing white matter disease

Every step you take will help fund life-changing research.

Together, we can change what's possible for vanishing white matter disease while having fun and getting fit at the same time!

Register now to take the challenge, make sure to also head over to the exclusive STEPtember Facebook group to connect with others, check in on how your steps are going, and connect with those affected with VWM.

This virtual challenge can be done by anyone anywhere to support Vanishing White Matter Research. Take on STEPtember 10,000 steps a day in September your way to take on steps for those that can't or struggle too. September is Leukodystrophy Awareness Month and to bring awareness to this awful disease, we will celebrate the steps we can take every day by challenging you! For every day you complete your 10,000 steps, we ask that you pledge a donation of $1, but for the days you don’t hit your goal a donation of $5 be made to Finding A Cure For Vanishing White Matter Disease.

Your support will help fund critical research and the first-ever human clinical trial being conducted at Amsterdam Leukodystrophy Center.

Make this challenge your own and complete your activity wherever and whenever works best for you with a friend, team, or solo. Step however you choose to step — walk, run, roll, dance, etc. The choice is yours! While we encourage everyone to fundraise, there is no fee to join or minimum fundraising commitment. We're grateful to have everyone involved at their own level of comfort. (the above is only a suggested pledge)

To participate in the challenge, simply fill out the form below and get to stepping. Don’t forget to download and save the step tracker at the bottom of this page. From there, you can join the challenge Facebook Group, and start your own Facebook fundraiser to encourage others to support your challenge and connect with us socially.

For those that take the challenge and make a minimum pledge donation of $100, you will receive an exclusive Finding a Cure for Vanishing White Matter disease STEPtember shirt at the end of the challenge (to be delivered in October)!! Shirts will also be available for purchase here: Shirt Order Form

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(Shirts will only be available for US Only)